Microsoft word - cy2010_adult_variable_list_03.10.2011.doc

HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
HIV RESEARCH NETWORK CY2010
ADULT VARIABLE LIST

PLEASE NOTE:
1. Variables that were new in CY2009 remain highlighted in blue.
2. Variables that are new or have changed in CY2010 are shaded in orange.
3. Variables that are no longer applicable, and that we ask you to no longer send, are shaded in gray.
(** Indicates required tables to be included in CY2010 data submission.)
(^ Indicates required table to be included in CY2010 data submission only if the data is available at
your site.)
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
ENROLLMENT DATA
Demographic **
Wide format: 1 row per patient
A numeric code, which cannot identify the patient. Do not use any part of the social security number in creation of this ID
SEX
F = Female
T = Transgender
U = Unknown
A =Asian / Pacific Islander
RACE
B =African American/ Caribbean
H =Hispanic
I = American Indian/Aleutian/Eskimo
W =White, not Hispanic
O = Other
U = Unknown
Report only month and year with the 15th day of the month. (Example: the patient's date of birth is 9/23/51 and should be DOB
Date of patient's first HIV primary care visit at site. A fixed variable (does not change over time.) Report only month and ENROLLDT
year with the 15th day of the month. (Example: the patient's date of enrollment to the clinic is 9/5/08 and should be set to 09/15/2008). Please convert HIVrisk1 to 3-letter code. MSM = Men who have sex with men
HIVRISK1
IDU = Injection drug use
MSI = Men who have sex with men and IDU
HEI = Heterosexual contact and IDU
HET = Heterosexual contact
VRT = Vertical transmission
BLD = Blood product(s)
OTH = Other
UNK = Unknown
Date of patient's HIV diagnosis. Note: Required for new
patients; optional for existing patients.
HIVdxDt
Report month and year only using the 1st day of the month. (Example: 04/01/1997) If just the year is known, please code as the first of the year (01/01/1997). Lowest known CD4 count prior to enrollment. It is only CD4NADIR
necessary to submit a CD4 nadir for new patients. Date of lowest known CD4 count prior to enrollment. CD4NADIRDT
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Code on a 1-10 scale indicating whether patient lives in a urban, semi-urban, or rural area. Use the University of RURAL
Washington's Rural-Urban Commuting Area (RUCA) data file provided by the DCC to match the patient's zipcode to the appropriate RUCA code. Note: DO NOT submit the patient's zipcode; only the numeric RUCA code. Vital History**
Wide format: Minimum of 2 rows per patient (* format example shown below table) Use same Unique Identifier used in demographic table to ID
Date of height or weight measurement (minimum requirement is submission of height and weight at enrollment only for new VHDATE
Indicate the type of vital history in text format. VHTYPE
or
Weight
VHRESULT
* Example of vital history reporting:
Site ID VHDATE VHTYPE VHRESULT
099
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
ARV History **
Use same Unique Identifier used in demographic table to ID
Indicate the patient's ARV history prior to enrollment to the clinic using the associated numeric value ARVhist
(Note: required for new enrollees).
0 = ARV-naïve
1 = ART-experienced only (i.e. non-HAART regimen)
2 = HAART-experienced only (including triple nukes)
3 = Both ART and HAART experienced (including triple
nukes)
9 = Unknown
If ART-experienced, indicate the earliest known ART regimen start date. If just the month and year are known, please code ART1Dt
using the 15th day (MM/15/YYYY). If just the year is known, please code as the midpoint of the year (07/01/YYYY). Only if the start date is entirely unknown, record as 9/9/9999. If not ART-experienced, leave blank. *Please submit all available ARV data in the "ART" table, including this 1st ART regimen and all other early ART regimens. Date of First HAART Regimen Date MM/DD/YYYY If HAART-experienced, indicate the earliest known HAART regimen start date. If just the month and year are known, HAART1Dt
please code as using the 15th day (MM/15/YYYY). If just the year is known, please code as the midpoint of the year (07/01/YYYY). Only if the start date is entirely unknown, record as 9/9/9999. If not ART-experienced, leave blank*Please submit all available ARV data in the "ART" table, including this 1st HAART regimen and all other early ART regimens. Status ** - deceased and lost-to-follow up patients only
Wide format: 1 row per patient
Use same Unique Identifier used in demographic table to ID
Record as Month, Day, Year the patient died or the date of last contact with the patient if the patient is lost to care. StatusDt
(NOTE: Patients are considered 'lost to care' after 12 months of no service/care provided.) D = Deceased
Status
L = Lost to care, Loss to follow up (12 months)
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
CLINICAL
Note: This begins the section where multiple lab values will be reported.
CD4 Detail **
Long format: 1 row per CD4 date and count; report all CD4 values within the observation period with a 30-day window prior
to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
CD4DATE
Record CD4 count on test date recorded in CD4DATE. CD4COUNT
CD4 Percent Date-RETIRED Date
Record CD4 percent test date if different from CD4 count date CD4PctDt
[PLEASE DO NOT SEND; CD4DATE SHOULD BE THE
ONLY DATE FIELD FOR THE CD4 DATA]
CD4PCENT
VL Detail **
Long format: 1 row per viral load date and count; report all viral load values within the observation period with a 30-day
window prior to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
VLOADDT
Please convert symbol to the associated 2-letter code. LT = Less than
VLSymbol
GT = Greater than
(If equal, leave symbol field blank.)
Record Viral load count for test date recorded in VLOADDT. VLOAD
Record Viral load log count only if actual count cannot be VLLOG
Please submit the text description of the viral load method VLMethod
Please convert viral load method text to the associated numeric VLMthdcd
1 = Ultra Sensitive
2 = Regular
3 = bDNA
4 = Nuclisens HIV-1 QT
9 = Unknown
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Hepatitis C Detail **
Long format: 1 row per Hep C test date and type; report all Hepatitis C test results within the observation period with a 30-day
window prior to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
HepCDt
Please convert test results to the associated numeric value. 0 = Negative
HepCRslt
1 = Positive
8 = Indeterminate
Please convert symbol to the associated 2-letter code. LT = Less than
HCVSymbol
GT = Greater than
(If equal, leave symbol field blank.)
Record Hepatitis C viral load count for test date recorded in HepCVLRslt
Record Hepatitis C viral load log count only if log transformed HCVLLOG
Please convert assay type to the associated numeric value. 1 = RTPCR Qualitative
2 = RTPCR Quantitative
HepCVLtype
8 = Unknown
(optional)
HepCgeno
Hepatitis B Detail **
Long format: 1 row per Hep B test date and type; report all Hepatitis B test results within the observation period with a 30-day
window prior to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
Please convert the test type to the associated numeric value. 1 = HbSAg
2
4 = Anti Hbe
5 = HbcAb IgM
HepBTypeDesc
6 = Hbc IgG
7 = HbcAb Total
8 = HBV DNA
HepBDt
Please convert test results to the associated numeric value. 0 = Negative
HepBRslt
1 = Positive
8 = Indeterminate
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Please convert symbol to the associated 2-letter code. LT = Less than
GT = Greater than
HBVSymbol
(If equal, leave symbol field blank.) Record Hepatitis B viral load result for test date recorded in HepBVLRslt
Record Hepatitis B viral load log count only if log HBVLLOG
Please convert assay type to the associated numeric value. 1 = Qualitative
2 = Quantitative
HepBVLtype
8 = Unknown
Other Hepatitis Serologies ** - all other Hepatitis tests other than HCV and HBV
Long format: 1 row per hepatitis serology date and type
Use same Unique Identifier used in demographic table to ID
TESTDATE
Please convert the test type to the associated numeric value. 1 = HAV IgG
TESTTYPE
2 = HAV IgM
(Numeric Code)
3 = HAV Total
4 = Anti HDV
5 = Biopsy
TestTypeDesc
Record only numeric test results in this field. (Biopsy results should be recorded in text format in the HPRESULT
HepbiopRslt field as shown below.) Please convert text results to the associated numeric value. 0 = Negative
HepTextRslt
1 = Positive
8 = Indeterminate
Record test results for biopsy hepatitis tests in this field. HepBiopRslt
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Resistance Tests ^
Long file: 1 row per resistance test date; report all Genotype/Phenotype results within the observation period with a 30-day
window prior to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
RtestDt
Please convert the test type to the 1-letter code. G = Genotype
RtestType
P = Phenotype
V = Virtual Phenotype
T = Trofile Assay
H = HLA-B*5701
RTGENRSLT
Record drug names/classes for each phenotype. RTPHERSLT
Submit fold-difference measurements for phenotypes for each PFOLDRSLT
Please convert test results to the associated numeric value. 1 = CCR5 co-receptors
RtestTrophRslt
2 = Dual/Mixed virus (CCR5+CXCR4 co-receptors)
3 = CXCR4 co-receptors
Please convert test results to the associated numeric value. 0 = Negative
RTHLARSLT
1 = Positive
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Other Labs ^
Long format: 1 row per lab test date and type; report all labs within the observation period with a 30-day window prior to the
start of the observation period.
Use same Unique Identifier used in demographic table to ID
TESTDATE
Please convert test type to the associated numeric value. 1 = Triglycerides (mg/dl)
TESTTYPE
2 = Cholesterol, total
3 = Cholesterol, HDL
5 = Glucose
6 = Hemoglobin A1C
Testtype_Text
8 = Creatinine
9 = ALT
10 = AST
11 = Alkaline Phosphatase
12 = Bilirubin, Total
13 = Bilirubin, Direct
21 = Albumin
14 = White Blood Cell Count (WBC)
15 = Hematocrit
16 = Hemoglobin
22 = RDW
17 = Platelets
18 = (code no longer used)
19 = Free testosterone
20 = Alfa-Fetoprotein (AFP)
23 = CPK
24 = CK-MB
25 = CK-MB Index
26= Troponin
27= Prothrombin Time
28= International Ratio
Please convert to the associated numeric value.
0
1 = Fasting
FASTING
9 = Unknown
Leave blank if N/A (e.g. Hemoglobin A1C, BUN, etc)
Record numeric test results only in this field. TESTRSLT
Text Test Result-RETIRED
[PLEASE DO NOT SEND; ONLY NUMERIC TEST
EndoTextRslt
RESULTS (TESTRSLT) DATA SHOULD BE SENT]
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Infectious Disease Labs ^
Long format: 1 row per infectious disease lab test date and type; report all infectious disease labs within the observation
period with a 30-day window prior to the start of the observation period.
Use same Unique Identifier used in demographic table to ID
Record date of infectious disease lab test. IDTESTDT
3 = Chlamydia
IDTESTTP
4 = Gonorrhea
5 = Toxo Ab
6 = Trichomonas
7 = Herpes Simplex Virus Type 1 (HSV-1)
8 = Herpes Simplex Virus Type 2 (HSV-2)
9 = Herpes Simplex Virus, Type Unknown (HSV)
10 = Syphilis
11 = Human Papilloma Virus (HPV)
12 = CMV Ab
Please convert assay type to the associated numeric value. 1 = Syphilis Screening Test
IDASSAYTP
2 = Syphilis Diagnostic Test
3 = Nucleic Acid Amplification Test (NAATs) (Gonorrhea,
4 = Serology (HSV)
5 = Culture (Gonorrhea, Chlamydia, HSV)
8 = Unknown
Please convert sample site to the associated numeric value. IDSite
1 = Cervical
2 = Rectal
3 = Urine
8 = Other
Please convert results to the associated numeric value. 0 = Negative/ Non-Reactive
INTERPRE
1 = Positive/ Reactive
TITRE
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Vaccinations ^
Long file: 1 row per vaccination date and type; report all vaccinations within the observation period with a 30-day window
prior to the start of the observation period.
Use same number used in demographic table to identify ID
Record date vaccination received by patient. If only year is known, record date as 7/1/YYYY for all vaccinations except VacDt
flu vaccinations. For flu vaccinations, if only the year is known please record date as 11/01/YYYY. Please convert vaccination types to the associated text code. TET = Tetanus
VacType
HEPA = Hepatitis A
HEPB = Hepatitis B
INFL = Influenza
PNEU = Pneumovax (Pneumococcal Polysaccharide)
PPD = PPD
QUAN = Quantiferon
ELIS = ELISPOT
TWIN = TwinRix (Hepatitis A + Hepatitis B)
DTAP = Diphtheria/Tetanus/Pertussis
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
ADI Detail**
Long format: 1 row per ADI date and diagnosis; report all AIDS defining conditions up to and including the observation
period.
Use same Unique Identifier used in demographic table to ID
Record as month/day/year of ADI diagnosis. If day is unknown, report as 15th of the month. If month and year are unknown, report as 07/01/YYYY. If no information is ADISTTDT
The first preference would be submission of ICD9 codes for diagnoses. However if data are not captured in this format, a ADIICD9
coding scheme is provided below and described at left. Code Full
(Optional format #1- Full Text Text
CMVENC Cytomegalovirus (CMV) Encephalopathy ADI
ADICODE
HSIMULC Herpes Simplex Chronic Ulcer >1 month HSIMBRON Herpes Simplex Bronchitis HSIMESO Herpes Simplex Esophagitis HSIMPNEU Herpes Simplex Pneumonitis ISOSP Isosporiasis KS Kaposi's Recurrent Pneumonia (> 2 in one year) HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Co-Morbidities
Long format: 1 row per co-morbidity date and type; report all co-morbidities within the observation period with a 30-day
window prior to the start of the observation period. The preference is to give diagnoses based on the definitions below this
table.
Use same Unique Identifier used in demographic table to ID
Record as month/day/year of event. If day is unknown, report as 15th of the month. If month and year are unknown, report as 07/01/YYYY. Only if the date of event is entirely unknown COMODATE
Please convert diagnosis to the associated numeric value. 1 = Hypertension
COMOTYPE
2 = Hypercholesterolemia
3 = Hypertriglyceridemia
4 = Diabetes
5 = End-Stage Renal Disease
6 = Non-ADI Malignancy
Indicate the source of diagnosis, including whether based on pharmacologic, laboratory, or clinical findings. If source of CMDXSRCE
diagnosis is not known, write "Unknown". * Hypertension: use of antihypertensive agent for 30 days or more Hypercholesterolemia: non-fasting total cholesterol > 260 mg/dl (2 confirmatory measures) or new use of a lipid lowering agent.
Hypertriglyceridemia: non-fasting total triglyceride > 300 mg/dl (2 confirmatory measures) or new use of a lipid lowering agent with
elevate triglycerides, or new use of a fibrate.
Diabetes: 2 or more random values of 200 mg/dL or higher or new use of a diabetic medicine for 30 days or more.
End Stage Renal Disease: any renal failure requiring peritoneal dialysis or hemodialysis.
Non-ADI Malignancy: histologic diagnosis of a malignancy.
Note: sites may submit laboratory or medication data that constitute a diagnosis of one of the above conditions. Please submit any
additional laboratory data for this purpose in a table similar to the format of Infectious Disease Labs; submit medication data in the
table Other Medications.
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Stage
Long format: 1 row per stage date
Use same Unique Identifier used in demographic table to ID
Record date of worst stage classification as month/day/year. If day is unknown, report as 15th of the month. If month and year are unknown, report as 07/01/YYYY. If no information is STAGEDATE
The CDC classification for HIV infection would be the preference for the coding scheme (see table below.) However STAGE
if this is not available, the text coding of HIV infection is proposed (optional format): A = HIV-asymptomatic
B = HIV-symptomatic
C = AIDS

Adult (≥13 years old) HIV Staging, MMWR 41(RR-17):1-19 December 18, 1992

Pediatric (<13 years old) HIV Staging, MMWR 43(RR-12):1-10 September 30, 1994
Clinical categories
Moderate
Immunologic
No signs/
Mild signs/
Severe signs/
categories
symptoms
symptoms
symptoms
symptoms
1: No evidence of
N1 A1 B1 C1
suppression
2: Evidence of
moderate
N2 A2 B2 C2
suppression
3: Severe
N3 A3 B3 C3
suppression
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
THERAPEUTICS
ART **
Long format: 1 row per ARV medication start date; report all ARV's that were prescribed within the observation period.
Preference is to provide start and stop dates for ARV's of interest, the codes for which are included in bold in the right column.
Use same number used in demographic table to identify ID
NRTI's
ATP Atripla efavirenz/emtricitabine/tenofovir
COM Combivir lamivudine/zidovudine
DRUG
3TC Epivir lamivudine
EPZ Epzicom abacavir/lamivudine
DDC Hivid zalcitabine,
ZDV Retrovir zidovudine,
DRUGCODE
Trizivir abacavir/zidovudine/lamivudine TVD Truvada tenofovir/emtricitabine
DDI Videx didanosine
D4T Zerit stavudine
ABC Ziagen abacavir,
TDF Viread tenofovir,
NNRTI's
ETR Intelence etravirine,
DEL Rescriptor delavirdine
EFV Sustiva efavirenz,
NEV Viramune nevirapine,
Entry Inhibitor
T20 Fuzeon enfuviritide,
MVC Selzentry Maraviroc
VIC (not licensed) Vicriviroc
PI's
AMP Agenerase amprenavir,
TPV Aptivus tipranavir
IND Crixivan indinavir,
FTV Fortovase
INV Invirase saquinavir-hgc
SAQ (not specified) saquinavir
KAL Kaletra lopinavir/ritonavir,
FPV Lexiva fosamprenavir,
RTV Norvir ritonavir
DAR Prezista darunavir
ATZ Reyataz atazanavir,
NEL Viracept nelfinavir,
Integrase Inhibitor
RGV Isentress raltegravir
Study Drugs
SSD Use for ART Study Drugs; identify drug in SSDName
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Please identify the ART study drug that was given to the patient. SSDName
If the date of drug initiation is prior to the observation period, record the first day of the observation period. If just the year is DSTARTDT
known, please code as the midpoint of the year (07/01/YYYY). If the month and year are known, code as the midpoint of the month (MM/15/YYYY). If the drug is a continuation from CY2007, code 1/1/2008 as the drug start date. Only if the start date is entirely unknown should the start date be recorded as 9/9/9999. If the date of drug discontinuation is subsequent to the end of the observation period, record the last day of the observation DSTOPDT
period. If the drug is continued into 2009 record 12/31/2008 as the end date for the data submission for that year. If just the year is known, please code as the midpoint of the year (07/01/YYYY) or if the month and year are known, code as the midpoint of the month (MM/15/YYYY). Only if the drug has discontinued and the stop date is entirely unknown should the stop date be recorded as 9/9/9999. DRUGDOSE
OI Prophylaxis **
Long format: 1 row per OI prophylaxis medication start date; report all MAC and PCP prophylaxis that were prescribed within
the observation period. The preference is to provide start and stop dates for the drugs of interest, the codes for which are
included in bold in the right hand column.
Use same number used in demographic table to identify ID
PCP Prophylaxis
DRUG
DRUGCODE
SULF Microsulfon sulfadiazine
MAC Prophylaxis
AZI
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
If the date of drug initiation is prior to the observation period, record the first day of the observation period. If just the year is DSTARTDT
known, please code as the midpoint of the year (07/01/YYYY). If the month and year are known, code as the midpoint of the month (MM/15/YYYY). If the drug is a continuation from CY2007, code 1/1/2008 as the drug start date. Only if the start date is entirely unknown should the start date be recorded as 9/9/9999. If the date of drug discontinuation is subsequent to the end of the observation period, record the last day of the observation DGSTOPDT
period. If the drug is continued into 2009 record 12/31/2008 as the end date for the data submission for that year. If just the year is known, please code as the midpoint of the year (07/01/YYYY) or if the month and year are known, code as the midpoint of the month (MM/15/YYYY). Only if the drug has discontinued and the stop date is entirely unknown should the stop date be recorded as 9/9/9999. DRUGDOSE
Other Medications ^
Long format: 1 row per medication start date; report all medications that were prescribed within the observation period. The
preference is to provide start and stop dates for the drugs of interest, the codes for which are included in bold the right hand
column.
Use same number used in demographic table to identify ID
DRUG
If the date of drug initiation is prior to the observation period, record the first day of the observation period. If just the year DSTARTDT
is known, please code as the midpoint of the year (07/01/YYYY). If the month and year are known, code as the midpoint of the month (MM/15/YYYY). If the drug is a continuation from CY2007, code 1/1/2008 as the drug start date. Only if the start date is entirely unknown should the start date be recorded as 9/9/9999. If the date of drug discontinuation is subsequent to the end of the observation period, record the last day of the observation DGSTOPDT
period. If the drug is continued into 2009 record 12/31/2008 as the end date for the data submission for that year. If just the year is known, please code as the midpoint of the year (07/01/YYYY) or if the month and year are known, code as the midpoint of the month (MM/15/YYYY). Only if the drug has discontinued and the stop date is entirely unknown should the stop date be recorded as 9/9/9999. HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Please convert drug type to the associated text code. LIP = Lipid Lowering
DrugType
DIAB = Diabetic Medication
PAIN = Pain Medication
CARD = Cardiovascular
TB = Tuberculosis medication
HEPC = Hepatitis C Treatment medication
PSYCH = Psychiatric medication
OTH = Other
DRUGDOSE
Pharmacy Dispensing
Long format: 1 row per medication date of dispensing; report all medications that were dispensed within the observation period.
Use same number used in demographic table to identify ID
DRUGSTARTDT
DRUG
Alternate name of drug (trade or generic). DrgName2
DRUGDOSE
PILLSNUMBER
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
RESOURCE UTILIZATION
Inpatient **
Long format: 1 row per admission date; report all acute inpatient admissions (and optional intensive care unit, hospitalizations)
within the observation period, including admission dates prior to the observation period if the discharge date is during the
observation period. For example, if a patient is admitted on 12/15/07 and discharged on 1/31/08, this admission should be
included in the CY2008 data submission.
Use same number used in demographic table to identify ID
ADMTDATE
DSCHDATE
Only report length of stay if discharge date is unavailable. LOS
Preference would be given to ICD9 codes. If diagnoses are not captured in this format, the text description of the diagnoses is Diag_1
to
Diag_N
suggested. Include ALL diagnoses during observation period. Preference would be given to CPT codes. If procedures are not captured in this format, the text description of the procedures is Proc_1
to
Proc_N
suggested. Include ALL procedures during observation period.
Please convert insurance type to the associated numeric value. IPINSCD1
1 = Private
2 = Medicaid
3 = Medicare
4 = Dual (Medicare and Medicaid)
5 = Uninsured
IPINSCD2
6 = Ryan White
7 = Medicare + Ryan White
9 = Unknown
IPINSCD3
Please convert severity to the associated 1-letter code. A = Acute Inpatient
I = Intensive Care Unit (ICU)
SVTLEVEL
Note: if Level is not specified, Acute is assumed. Please convert discharge type to the associated text code. HOME = Transfer to Home
IPDSCHTP
HOSP = Transfer to Hospice
NURS = Transfer to Nursing Home
REHAB = Transfer to Rehab
DEATH = Inpatient Death
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Outpatient **
Long format: 1 row per visit date; report all outpatient visits in the observation period
Use same number used in demographic table to identify patient.
ID
OVSTDATE
Please convert visit type to the associated numeric value. 1 = HIV primary care visit
HIVPRCARE
(NOTE: An HIV primary care visit is defined as "a visit with a
medical provider - MD, DO, Fellow, Resident, PA, NP - in the
HIV clinic")
2 = Nurse
3 = Social Worker
4 = Pharmacist
5 = Case Manager
6 = Nutritionist
8 = Other
0 = Specialty/non-HIV primary care visit type (examples
include visits to a dentist, ob/gyn, hepatologist, etc.)
9 = Unknown
CPT codes or another coding convention to describe the type of outpatient visit, particularly for specialty/ non-primary care OVSTTYPE
Preference would be given to ICD9 codes. If diagnoses are not captured in this format, the text description of the diagnoses is Diag_1
to
Diag_N
suggested. Include ALL diagnoses during observation period. Preference would be given to CPT codes. If procedures are not captured in this format, the text description of the procedures is Proc_1
to
Proc_N
suggested. Include ALL procedures during observation period. Please convert insurance to the associated numeric value. 1 = Private
OPINSCD1
2 = Medicaid
3 = Medicare
Secondary Insurance (optional) Numeric 1 4 = Dual (Medicare and Medicaid)
5 = Uninsured
OPINSCD2
6 = Ryan White
7 = Medicare + Ryan White
9 = Unknown
OPINSCD3
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Primary Care Procedures (These visits must be reported separate from the outpatient table)
Long format: 1 row per procedure
Use same number used in demographic table to identify patient.
ID
PCProcDt
PCProcRefDt
Please convert procedure type to the associated text code. PAP = Pap Smear
PCPROC
MAM = Mammograms
COLON = Colonoscopy
PCProcRslt
PCProcAction
Emergency Room
Long format: 1 row per ER visit date; report all ER visits in the observation period
Use same number used in demographic table to identify patient.
ID
EVSTDATE
Preference would be given to ICD9 codes. If diagnoses are not captured in this format, the text description of the diagnoses is Diag_1
to
Diag_N
suggested. Include ALL diagnoses during observation period. Preference would be given to CPT codes. If procedures are not captured in this format, the text description of the procedures is Proc_1
to
Proc_N
suggested. Include ALL procedures during observation period. Please convert insurance to the associated numeric value. ERINSCD1
1 = Private
2 = Medicaid
3 = Medicare
4 = Dual (Medicare and Medicaid)
ERINSCD2
5 = Uninsured
6 = Ryan White
7 = Medicare + Ryan White
ERINSCD3
8 = Other
9 = Unknown
Please convert discharge type to the associated 4-letter code. INPT = Admitted to Hospital
ERDSCHTP
HOME = Discharged to Home
HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Mental Health Diagnoses ^
Long format: 1 row per diagnosis
Use same number used in demographic table to identify patient. ID
Preference would be given to ICD9 codes. If diagnoses are not captured in this format, the text description below is suggested. MHDXICD9
Include ALL diagnoses during observation period. Please convert text descriptions to associated numeric value. Database Code Full Text
MHDXCODE
(for numeric code)
New: MHDX
(for full text)
or chronic pain disorder
13
MHDXSTDT

Mental Health Visits ^
Long format: 1 row per visit date
Use same number used in demographic table to identify patient.
ID
MHVSTDT
Please convert service provider type to 2-letter code. MH = Mental Health Provider
SW = Social Worker
PC = Primary Care Provider
MHPROVTP
OT = Other (specify in MHVSTTP)
UN = Unknown
Specify mental health visit type if other selected in MHPROVTP or provide additional text to describe visit type HIV Research Network - Adult Cohort Variable List CY2010 **FINAL** VARIABLE DESCRIPTION
FORMAT FIELD
GUIDELINES
VARIABLE NAME
Substance Abuse Diagnoses ^
Long format: 1 row per diagnosis
Use same number used in demographic table to identify ID
Preference would be given to ICD9 codes. If diagnoses are not captured in this format, the text description below is suggested. SADXICD9
Include ALL diagnoses during observation period. Please convert text descriptions to the associated database Database Code Full Text
SADXCODE
(for numeric code)
SADX
(for full text)
Other - Specify
SADXSTDT
Substance Abuse Visits ^
Long format: 1 row per visit date
Use same number used in demographic table to identify ID
SAVSTDT
Please convert service provider type to 2-letter code. SA = Substance Abuse Professional
SAPROVTP
MH = Mental Health Provider
SW = Social Worker
PC = Primary Care Provider
OT = Other (specify in SAVSTTP)
UN = Unknown
Specify substance abuse visit type if other selected in SAPROVTP or provide additional text to describe visit type

Source: http://portalcontent.johnshopkins.edu/HIVRN/Docs/CY2010_Adult_Variable_List_03.10.2011.pdf